Today my prednisone starts tapering again. This will be a test to see if I’m really improving or not. So far I’ve stayed out of the hospital for just over a week, but I’ve also been on a high dose of prednisone for eight days. Over the summer every time my taper has dropped down to a certain point everything flares up again. There are some good signs though like I’m starting to sleep again and feel tired, and my voice is also sounding slightly normal.
I had the chance to consider returning to work this week but decided not to. It’s just not worth it. I’m still not able to be up on my feet all day. Just doing what little around the house still leaves me worn out and exhausted. I’m continuing to have bad spells at least once a day and I know just walking and talking at work would be detrimental. I need to return ready to work, not dragging myself around and panting like I just ran a 5K.
My albuterol use has also decreased, which is wonderful. I did over 200 neb treatments last month alone and would love to eventually get down to just four a day in the next couple weeks if possible. For now I need to continue focusing on resting up, doing appropriate amounts of physical activity every day, stay on top of my school work and be ready for SARP.