Another week, another trip to the ER. They’re really starting to know me there.
- Our friend Haley got me checked in at the registration desk
- The triage nurse remembered me
- The nurse who got me into a room has seen me at least 3x this summer
- The respiratory therapist has helped me 3x now I think
- The x-ray tech has scanned my chest at least once before
- Also recognized Dr Wilson who I’ve seen before and has an EXCELLENT bedside manner
So why aren’t you better yet?
This is an excellent question I’ve heard from a few people and have also asked myself. This whole past week has been a rough one with asthma attacks on five days out of seven. One was caused by 2nd hand cigarette smoke and the rest were allergy/weather related. All five times this past week I’ve had to decide whether or not to go to the ER. My peakflow numbers were at 50% or below, my oxygen saturation has been 89% to 93% pretty consistently, I’ve had trouble walking and moving around, and I’ve been mentally fuzzy. These are all good reasons to seek medical attention. Tonight was slightly different because my nights are usually bad between 10pm and 4am, and this time my symptoms fired up around 7pm. I was short of breath, experiencing varying degrees of chest pain for different reasons, coughing, and my nebs were working but not lasting long. These combined with my gut feeling of “it’s going to get much worse” in the next hours are what made the decision for me.
The ER was packed on arrival and we later found out that was the least busy it had been since 1pm. Liz and I waited a little before being taken back, but we heard others being told there was a three and a half hour wait. Fortunately I bring all my meds with me so I just hung out and nebbed until it was my turn. I don’t know if it’s because they recognize me, I’ve been in so many times this summer or I’ve just learned how to communicate effectively…but lately I tend to get asked what I think should be done.
RT: Aw man, you’re back again?? So what do you think we should do? Albuterol? Duoneb? Want some pulmicort?
I had just done an albuterol in the waiting room so we followed up with some duoneb. It helped, but didn’t open me up much and I quickly regressed to where I was earlier. I was glad this happened because it made a point as to why I’ve been nebbing 8 to 10 times a day and the relief just isn’t lasting. They got me started on some salumedrol, as usual, and then followed up with a pulmicort neb. Pulmicort is a steroid which addresses swelling in the airways and is different from bronchodilators, like albuterol and ventolin, which help address the muscles constricting around your airways. This really helped to open my airways and allow me to breathe more deeply for a longer amount of time. In the past I’ve had a combo inhaler (advair, symbicort, dulera, etc) along with another steroid inhaler acting as a booster for maintenance. This summer I’ve been wondering if taking pulmicort or asmanex in addition to the dulera would help. I’m adding this to my list of questions for the pulmonologist.
Lots of taking it easy, that’s what. I’m working on some good questions for my lung doctor when i see him this week and am counting down the days to Pittsburgh. I’m not expecting to be magically cured in Pennsylvania, but I am looking forward to another opinion and getting some of these tests done that have always been on the extreme/unnecessary list. Maybe they’ll find something new and at the very least I’ll be contributing more data towards new treatments and understanding of how asthma functions.
I was glad to see the nebulized steroids make such a difference tonight. That would probably do the trick for me at home when I’m up all night not being able to breathe deeply enough. We also noticed my oxygen saturation dipping to 90% and below most of the time when not on 2L of supplemental oxygen. This hasn’t really been as much of an issue before and I wonder if that means anything. For now we’ve once again bumped up my prednisone taper and I need to return to the ER if things become bad enough to warrant another visit. I also talk to my allergist about doubling my Xolair injections starting this month. With allergies being so bad and mold season around the corner this might help me get a head start before leaves are falling and the combines are running.