I should note this isn’t my 7th visit for this part of the year, but my seventh 2013 visit. Things were going ok, until I ran into some snags with environmental triggers and needed to up my prednisone dose temporarily. That was working pretty well until I dropped from 40mg to 20mg. I was having increased night time symptoms and my oxygen levels haven’t been in the normal range like they usually are. Last week I passed out a couple times at home. I’m just glad it didn’t happen while out and about anywhere. My weekend was a little rough as usual with most of my time just spent in bed or on the couch. One of those things I’m almost always asked at work on Monday is how my weekend went, what did I do, what did I accomplish? I usually give some non-committal answer because who wants to know that I only slept about 10hrs total, laid on the couch for 24hrs and watched 32hrs of television?
Monday was a little rough for me at work. Liz was thinking maybe I should stay home but I needed to teach that afternoon. I made it through the class ok but was constantly having to stop and breathe as I wasn’t able to get enough air out while talking. It’s one of those things that can be hard to explain without having experienced it before. I guess you could imagine trying to have a conversation while jogging/running too quickly.
Monday night was worse and Tuesday morning even more so. Once again Liz was questioning my need to go to work and asking if I needed to go to the hospital. That’s always a sign the inevitable is becoming obvious. That morning I woke up with peakflows around 50% and my oxygen saturation under 90%. Getting my morning meds and some albuterol in me usually perks me up, but by the time I was at my desk an hour later I was right back where I had started with my O2 bouncing between 87-92%. I got another neb going and informed Liz what was happening. I didn’t improve much at all so within an hour Liz had picked me up and gotten me over to my “Cheers,” aka the local hospital, where everyone knows my name on the night shift. Even though this was early/mid morning, my nurse was someone I’ve seen several times before and the ER doctor on duty was one who had treated me earlier this summer as well.
I really enjoy working with medical professionals who take the time to listen and read. This doctor knew I had been in there before and instead of doing the standard gamut of tests and imaging scans wanted to know what I thought would help. We briefly discussed a few things and minutes later they started an IV with 125mg of salumedrol along with some ativan to try and relax things inside my chest. On room air I was able to get back up to 95-96% for a while and then it started dipping back down to 90-93%, but it was better than when I arrived. They eventually let me bounce around lunch time and I was able to spend the rest of the day resting at home.
The original taper for the day, plus the IV drugs and the modified prednisone I took later in the day got me up to about 200mg which isn’t exactly for lightweights. I really hate the side effects of the drug, but it at least offers significant benefits for me. Today I’m able to somewhat talk and walk around the house a bit. I’m not constantly panting or looking for something to grab onto or hold. Yesterday at work I went to fill a water bottle at the sink and had to find a chair to sit down while the bottle filled. I don’t feel fine by any means, but I’m at least able to be up and moving around a bit. Hopefully I can go back to work tomorrow and get a day in before I head back out to PA to follow up with my non-local pulmonologist.