This week I had to call up my lung doc to get the prednisone refilled. When I picked it up the next day at the pharmacy I noticed it has 11 refills between now and Jan 2015. This either means I’m on the stuff for a lot longer than I want or he’s just tired of the refills. I’m pretty sure I’m just going to be on it for a while and even though I heartily dislike popping these particular pills every day, it’s a better alternative than trips to the hospital every few weeks.
Last year I was told I basically had three options:
- Become steroid dependent
- Look into bronchial thermoplasty
- Go visit an asthma center and get a full pulmonary diagnosis
Since then I’ve started SARP and have been on prednisone for months. The good news is I’m at work most of the time and can walk around without feeling horrifically awful. I still have the occasional setback, but I haven’t been to an ER/ED for almost three months. I don’t spend all my time in bed or lying down like I used to. I’ve been able to socialize a bit, cook food I want to eat and do random things here and there. While I don’t see myself being magically better any time soon, I am seeing very slow and gradual progress towards being not so chronically ill. I’m really hoping to make some strides this winter and stay away from flu/pneumonia in order to not be knocked off my feet when allergy season starts up again.