February

A lot of things have been happening this past month

  • I had several asthma attacks due to over exerting myself in the snow outside in sub-zero temperatures
  • My prednisone in-take is finally back down to 5mg again
  • I’m finally starting to lose some water weight from the lower prednisone dose
  • I’m not feeling great, but also not feeling awful every day
  • We have a new kid in the house
  • Philip Seymour Hoffman died
  • I heard I might get off the prednisone in 6 to 12 months
  • Jimmy Fallon finally kicked Leno out
  • OLYMPICS

Prednisone:

While I’ve always had at least moderate asthma, there were always a few things that separated me from those with serious asthma problems.  Prednisone was something I had to take every so often, but never longer than a week, two at the most.  Last year I did a taper or two and then have basically been on it since late May.  While it drives me nuts and has some unpleasant side effects, I strongly believe it’s keeping helping me breathe better and I’d rather take these pills every day than end up in the ER on a regular basis like I was doing just a few months ago.  I know some people who have been on prednisone for years and can’t really relate to that.  There’s a good chance I’ll be on these steroids for a while, but at lest there’s a chance I can stop taking them before 2015.

Exercise and activity levels:

You never quite understand exactly what you have until you don’t have it anymore.  I’ve heard this statement so many times, but it’s never rang truer this past year.

  • I used to park half a mile away from my building at work and do the one mile round trip 1-3x a day.
  • I never had to consider just how far away something was on campus before deciding to walk, catch the shuttle, drive or not go.
  • I have to carry a man-purse with all my medical necessities everywhere I go.
  • At some point in time, every day, I feel kind of awful.
  • I try to make plans but often have to cancel them.

I’m trying to walk around as much as possible and not worry too much about doing anything heavy duty.  I think Liz enjoys yelling at me whenever I try to do anything outside.  Last week my local lung doc told me to stop breathing the cold air, so I guess I should probably listen.  Fortunately Spring is on its way so as long as allergies don’t kill me, I’ll be able to start walking outside more as well.

New Baby

Yes, we have a new baby in the house.  I recently listed off a list of possible nicknames for the little dude, but Liz is calling him Neville on the internets so it seems I should too.  Chuck has been great.  She’s very helpful in an appropriate way without bugging or pestering the little guy.  He’s pretty chill and Dude-like, which we appreciate.  He’s also not up every hour all night long so we have been getting some sleep.  While there is a certain amount of stress with taking care of a new baby, the worst is getting busy and forgetting to take my medicine, which doesn’t help at the end of the day when I sometimes crash out of nowhere.

1932300_749286268943_471788134_n

It’s hard to stay mad at him too long for forgetting to take my meds.  The kid already loves beards.  THE KID LOVES BEARDS.  He also likes taking it easy and folding his arms like he’s in a 90s boy band.

Brandt Died

It was a real shock for me to learn Philip Seymour Hoffman died.  The New York Times posted the story and I learned about it a mere three minutes later.  He was truly one of the few great actors of his generation.  We’ve tried to come up with other actors who are at the same level he was…it was hard to come up with a list of names.  I haven’t been affected this strongly from a celebrity dying since Heath Ledger died, only Hoffman passing is a much bigger deal.  It’s weird to think Jackie Treehorn and Brandt are no longer with us.  I can’t even imagine what kind of roles and performances could have come out of Hoffman in the next 20+ years.

  • jules marsh

    Congrats on the little man’s arrival. He’s very cute!
    I’m also still on the dreaded pred!! But hoping to start tapering and get off it in the next month or so!! Keep well xx

  • Thanks! Good luck on the prednisone. I “might” be able to stop taking it in 6 months, but that’s not looking hopeful.