Archive for August 2016

CPAP Mask Liners

There’s a new-ish product out there for us CPAP users to help masks seal against your face, and avoid those red marks and sores. I give you the mask liner:

remzzzsnasalcpapmaskliner

This past month I’ve been using RemZzzzs mask liners for my Comfort Gel Blue nasal cushion mask and love them. When I’m not feeling well, I’ll use my CPAP even when not sleeping just to get some breathing relief. As many of you know, the extra mask time can really irritate your face. Last summer I got some bad sores from using a mask too much and I’m not really sure what else I could have done about it. I regularly clean my cushions and mask, and was careful not to over-tighten the headgear. It’s the simple combination of time and pressure that can turn coal into diamonds. The mask liner will create a barrier between the cushion and your face, create a uniform surface to help create a seal, and soak up moisture or natural oils from your skin.

I’ve tried to do this on my own in the past. Liz gave me the idea to fold up a piece of toilet paper. It kind of works, but isn’t shaped correctly and I could only do this across the bridge of my nose. The mask liners are made to perfectly fit your mask.

I purchased a box of 30 mask liners on Amazon for about $25. These aren’t the cheapest of things, but if used only when needed, I’m sure you could make them last. I talked to my cpap supply company, National Sleep Therapy, a few days ago and they can sell me mask liners but insurance will not cover them at this time. If you’re not sure about spending the money, the RemZzzs website does have a link for a free trial.

One other trick I’ve done is to have two different masks. Along with the Comfort Gel Blue nasal cushion, I also have a Nuance Pro nasal pillow. I’ll either switch up the masks every other night, or just wear the one that feels best. If my sinuses are clogged up at all, the Nuance is going to be the toughest to handle. Then when I re-order supplies every 90 days, I alternate between the cushions and the pillows so I always have some for each mask type.

I have a full beard and was warned from the start I’ll have trouble finding masks with a good fit. I bet I could wear a full-face mask with a liner.

It’s been feeling a lot like August

August is always my worst month of the year. It’s hot and humid, ragweed flourishes, and I tend to get sick. This summer has been the usual with plenty of missed days, CPAP time, and breathing treatments.

My daughter picked up a cold the first or second day back at school and shared it with the family. It’s been awful. I just finished a z-pack and some prednisone, but still aren’t feeling great so my doc had me do bloodwork and chest x-rays to see what’s going on. In the past, I’ve just gotten stronger and stronger anitbiotics until the sickness goes away or I’ve ended up admitted. I appreciate the attempts to make sure it’s a bacterial infection before the unnecessary use of more medicine.

In a couple days I’ll go in for my echo. One of my lung docs wants me to be re-evaluated for pulmonary hypertension. My right ventricle was enlarged on my first echo back in 2010. I’ve had two since then showing things to be normal, which has been attributed to my strict adherence to CPAP therapy. Lately I’m always short of breath, my chest hurts, my blood pressure is often higher than normal, and there are a few other signs that need to be ruled out. I’d really love them to find something, anything. For years it has always felt like there’s something not yet diagnosed. If they found something, I could at least be treated for it and maybe not feel like crap all the time. I’d love to do normal things again.

SOB

The first time I saw “SOB” written on some paperwork I was a little offended and slightly confused until I learned it was the abbreviation for short of breath. Right now, that seems to be all I am. I’m constantly huffing and puffing while trying to do really basic stuff. I haven’t been getting much work done. Last Saturday I felt sort of ok so I did some cleaning and picking up, but then spent all of Sunday in bed and this week I feel constantly tired and exhausted.

I’ve been talking to both of my lung doctors and I now have an upcoming echocardiogram scheduled. I think this will be the 4th one I’ve had. The first one was about six years ago and showed my right ventricle was enlarged. I started using a CPAP after that which has helped the right side of my heart to shrink back to normal, but every couple years the symptoms come back. This time seems worse than the others for me. A few weeks ago I went in for my PFTs and the numbers were actually 5% better than six months ago. It seems odd to have so much trouble breathing when my lung function hasn’t gotten worse. I’m hoping to find out something sooner than later because this is really cramping my lifestyle. Just going to a store and walking around is enough to tire me out and require me to lie down for a rest.