Archive for Asthma Boy

Tree pollen is kicking me in the lungs

It’s definitely that time of year again. The trees are twitterpated and spreading their pollen all over the place with little regard if people like me even want their powdery, yellow/green gift. My nose runs, I sneeze, my eyes burn and swell; I cough, my throat hurts, my skin turns red, and I wheeze; I get headaches and it’s hard to breathe.

In talking with my lung doc he’s fairly certain I’m getting mucus plugs in my airways as well as swelling and inflammation. They’re trying to keep me off prednisone so for the time being I’m taking vitamin C, vitamin D, and magnesium. The magnesium seems to really help with the wheezing. I also picked up a couple incentive spirometers which I use daily to help “pop my airways open.”

It’s kind of like breathing exercises and would benefit anyone. Many recognize these as “those things you breathe into at the hospital.” Right now I’m keeping one at work and another at home. It’s kind of like a reverse peak flow meter. It’s interesting to see on the days I feel really bad I’m only able to inhale 1500 to 2000 ml and on good days I’m able to do more around 3000 to 3250 ml.

My larger goal in all this is to stay out of the ER/hospital. There have already been times I probably would have gone in several years ago, but now with my added experience and know-how, I’ve learned how to deal with it at home. I think I’ve had six times so far in the past month where my allergies have become so bad to significantly affect my breathing. I’ve found the trick is to take lots of antihistamines, relax, and chill with my CPAP on for as long as possible. It has resulted in some pressure sores/lesions on my face, but I’ve figured out how to avoid those as well. How’s the allergy season going for you so far?

Automated Pollen Counter

I came across this site today. It’s a project where a team is working on a device to have in your home that detects amounts of pollen and other particulates in the air. This could help those sensitive to air pollutants to know what is bothering them. I think it would be really interesting to have that kind of data, but maybe not at the $350 price tag listed in their survey. I happen to be allergic to almost everything outside so I’m not sure how knowing those allergens are present would help me. What’s really interesting is how this data could possibly supplement data collected nationally. It’d be kind of like a home weather station, only an allergy station.

http://pollensense.com/

Helping Grandpa

When I was a kid I spent a lot of time with my Mexican grandfather. The guy is a genius. He is both an electrical and mechanical engineer and worked for Amana Refrigeration for years. When hanging out with him, there were always projects involving wiring, plumbing, carpentry, combustion engines, drywalling, framing, painting, etc. The guy can take a car apart and put it back together without any extra bolts or washers lying around afterward.

Many times I remember helping him and accidentally messing something up. Once I stepped on a sheet of drywall and broke off the end. Several times I knocked over containers or tiny pieces and parts. I would volunteer to help and sometimes give up to do something more “fun” halfway through. I’ve broken tools and equipment on accident, and have become bored on many trips to find materials or needed parts.

Sometimes he became frustrated, but most of the time he acted like it was no big deal. Last weekend I was getting rid of some bank statements and other documents now that taxes are submitted. I got a new paper shredder and naturally Ruthie wanted to help. Who doesn’t love shredding papers?

I gave her a stack of things and before I knew it, the shredder was jammed up awesomely well. It took me 30 min with a long screwdriver to unclog the thing. At first I was frustrated and vocalized it, but then I remembered all the times I had screwed things up for my grandpa and realized it’s not that big of a deal. All I ever wanted to do was spend time with him and try to learn the amazing things he was capable of doing. I wouldn’t say using a paper shredder really compares to re-wiring a house, swapping out a water heater, or replacing the head gasket on a 1988 and 1/2 Ford Escort…but I try to put myself back in the shoes of a kid who wants to help. I’m happy to say I think I learned a lesson in there and Ruthie’s back on the paper shredding job.

Wear your CPAP

If you suffer from sleep apnea or a similar conditions which requires you to wear a CPAP/BiPAP/APAP, it is very important you do. It always shocks me when I talk with friends who are supposed to be wearing their mask at night but instead choose to put it in the closet, etc., because they don’t like it. Personally, I’d rather not sleep than sleep without my CPAP and last week unfortunately proved that for me.

It was Saturday morning/afternoon and I was out in the living room watching TV. The next thing I know, Liz is yelling and yelling at me to wake up. I had unintentionally fallen asleep for 90 min or so on the couch. Little cat naps aren’t supposed to be a big deal, but they are for me. I felt awful and was having trouble functioning. I made it to my room and got my mask on. Later that evening I walked to the kitchen to get some water and my O2 sat was down to 81%. I then spent three of the next four days like this:

20150301_124101

In addition to getting nothing done and missing some work, I also now have a sore on my face from where my mask rests. I’ve gotten red marks before from having my humidity turned up too high, but this is worse. I’m sure the best thing for it would be sunshine and open air, but I have to put my mask back on every night. My CPAP cleaner does a good job of sanitizing everything, but I’m not sure what to do about the sores on my face. I am thankful my oxygen levels are back to normal and I’m not constantly short of breath.

TriggerNeb reusable nebulizer set

I just got an email from JustNebulizers.com about a new neb set they offer. Is it just me, or are they making breathing treatments more and more like smoking a hooka?

TriggerNeb Reusable Nebulizer Kit: http://youtu.be/bcOUaD3LQFE

Automatic CPAP cleaner

I think it’s fair to say most CPAP, BiPAP, Auto-PAP, etc., users dislike having to clean their equipment. If you’re like me, you think about it right before you need to use it. I’d been hearing good things about the SoClean 2 from Better Rest Solutions, and decided it would be a good idea to try it out.

Price
The price is a bit on the expensive side. I got mine from National Sleep Therapy with a coupon code and that helped. I’ve been having so much trouble with colds and other viruses, I thought it was worth trying. Luckily I had FSA money to use.

Functionality
The unit includes a short instruction manual that made it quite easy to figure out how the SoClean 2 works. My CPAP has an attached humidifier and there are directions for those with or without humidifiers. There are also additional instructions for those with heated hoses. The SoClean 2 can run on a programmed scheduled, or be ran manually. It comes preset to clean at 10am. After I wake up in the morning, I place my mask into the cleaner, shut the lid, and it’s clean when I come home.

How it works
I’m no scientist and therefore am unable to accurately describe exactly what happens. The SoClean 2 uses activated oxygen to clean your mask, cushion, hose, and humidifier. It runs for 5 to 10 minutes, and then you must wait 2hrs before using your CPAP again. With all my breathing issues and winter woes contracting sickness from everyone I’m around, the last thing I need is my own medical equipment perpetuating sickness. There are some comments about a smell from the cleaning process, and I read one review where it was described as a swimming pool/chlorine smell. That kind of makes sense, and I want to point out it doesn’t bother me at all. It doesn’t stick around very long. It is suggested you run your machine for 20 seconds or so to clean the smell out. All I know is that if I’m lazy and don’t clean my mask/cushion for a week, the smell from that is much, much worse than what the cleaning leaves behind.

Recommendation?
I would definitely recommend this unit if you have the money to spend on it. There are some replaceable pieces you do need to take care of every six months, similar to replacing parts of your nebulizer or CPAP. The cost isn’t too bad, currently $30 gets you the replacement kit from Better Rest Solutions. You can still clean your machine as usual with soap and water. I’m finding this convenient, time saving, and it gives me piece of mind.

 

I think I’m over the flu

I hope everyone’s doing ok. Winter seems to be my best time of year since most of the plants outside are dead. I ordered a new, fancy CPAP cleaner this week and will write up a review once I’ve tried it out. It’s not a big deal to clean masks and cushions, but the hose and humidifier reservoir are things I’ve never been good about cleaning.

Like almost everyone I know, the flu came through our house. I was extra special and picked up two separate strains of it. I feel as though I’m also getting back on my feet from my last hospital adventures, etc. I’m also taking a break from school to sleep more and catch up on life. Next up on my To-Do list is taxes. It always takes me a while to compile, sort, and calculate itemized deductions for medical.

Summer 2014 ER Trip #4 and Hospital admission #1

A couple of months ago I ended up at the ER again short of breath, with chest pains, flaring allergies, and low oxygen.  They ended up keeping me a few days mostly because my o2 was in the 80s and my ABG came back not good.  I ended up connecting with a great hospitalist who looked through my medical history and really wanted to track down the root cause of my health issues.  She ran some tests and was in close contact with both of my lung doctors throughout the process.  After being released I saw my second pulmonologist out in PA, did more tests and it was determined I do not have asthma.

Even after a couple of months it feels weird to say that as it has been a big part of my life for the past 23 years or so.  I still have the breathing problems, but it was confirmed I do have vocal chord dysfunction (VCD) and my chords are pinching on exhale which really mimics asthma.  I was often asked if it was hard to breathe in, assuming VCD could be pinching my throat shut on inhale, but for me it was the other way around.  I was taken off a lot of medications and given a few new ones to take.  I’m still having a rough time with Fall allergies, the rotting leaves outside, and smoke outside.  I’m looking forward to winter when the outdoor allergens freeze and I’ll have a few months of better breathing.  Hopefully my health will be in much better control next year.

Beard Oil Flyweight Sampler Pack

A little over a week ago I ordered Pugilist Brand’s Beard Oil Flyweight Sampler Pack. It contains:

  • Buccaneer Blend beard oil sample
  • Cedar Atlas Shrugged beard oil sample
  • Citrus Grove beard oil sample
  • Frontiersman beard oil sample
  • Zen Musk beard oil sample
  • $3 off coupon for your next purchase of a full-size, 1 ounce beard oil

This retails for $8 with a couple bucks for shipping. I’m not sure on the size of the sample bottles, but you should get at least a couple applications per bottle as long as your beard is less than 5-6″ long. My beard is a about 5 months old at the moment and 4″ long. I didn’t fall in love with any of the scents, but I still dig what Pugilist Brand is doing and here is why.

Customer Service

There was a slight hiccup with my order when it arrived, and like any social media user I contacted Pugilist Brand through Twitter. They responded immediately, most of my order was refunded, and for that reason I’m calling this a sponsored review. Too many times I’ve tried to contact a company for good or bad reasons and have been stonewalled or treated poorly. Pugilist Brand knows how to treat their customers, and welcomes feedback.

Sample Pack

I love that they offered a sample pack I could try to see if I liked their products. I’m picky about how things smell. I’m also not really into cologne/scents/fragrances, so I’d hate to spend $15-$30 on an entire ounce of beard oil to find out I really can’t use it. If you’re like me, be sure to check out return policies if you’re leery of spending the cash not really knowing what it’s going to be like. For $8 you can try all five of their beard oils and get at least 10-14 days use out of the samples.

Pugilist Brand also has many sets and combinations of their products for beard enthusiasts at discounted prices. If you want to buy multiple beard oils, or combine oil with soap, pomade, mustache wax, etc; their is most likely an option for you that coincides with your budget.

Quality Oils

If you look at how they make their beard oil, it contains the usual suspects: almond, jojoba, argan, and castor. I would have to say Pugilist Brand’s beard oil was probably the most lightweight I’ve used so far. I felt like I needed to use slightly more for an application than oils I’ve used from other companies, but that might be what you’re looking for in an oil. Comparatively, this beard oil goes for $19 an ounce while Beard Brand and Beard Baron sells for $25. So even if you’re using slightly more, it does cost less. I did not notice any real difference in the condition of my beard while trying out Pugilist Brand’s compared to other oils I’ve been using.

Here are a couple pictures. I always like to compare customer pictures to what companies post on their web sites.  For starters, they have an awesome rubber stamp they slap on their envelopes.

pugilist_envelope

Here are what the samples look like.  That is their business card for size reference.

pugilist_beardOil1pugilist_beardOill2

 As I mentioned above, I didn’t love any of the scents, but that doesn’t mean you won’t. I’d love to know what others think of Pugilist Brand, especially compared to other similar beard products.

I’ve made it halfway through August

Every year, August is an especially rough month for me and mister asthma.  A year ago today I was in the hospital having an awful time, not sleeping, and anxiously watching the clock waiting for the RT to come by for another treatment.  I hate being in the hospital and, in my dislike for being sick, I often try to bounce back earlier than I am able.

I should really listen to Liz more often, cause she’s never wrong.

It was probably 9 or 10 years ago I casually mentioned to Liz, “I have asthma kind of bad.”  That may not seem like a big deal or a bold statement to make.  In actuality it was my way of showing Liz I trusted her enough to nonchalantly downplay my serious respiratory condition.  Back then I tried to hide my asthma as much as possible.  I didn’t deny having the disease, but I let as few people as possible ever see me having any trouble.  A good portion of my life has been spent pretending like I’m ok, and it seems like people usually buy it.  There’s a lot you can hide by sitting, smiling, nodding, making hand gestures, and just acting chill.  When things got really bad, I’d just disappear for a few days in my apartment and no one thought anything of it.

In the past 10 years Liz has seen pretty much every aspect of the disease.  She’s seen me go from fine to gasping within seconds, she’s taken me to doctor’s appointments, and has sat with me on many, many hospital trips.  She’s picked up who knows how many prescriptions for me at the pharmacy.  She’s watched me try to walk down the hallway to get meds to end up on my face, on the floor.  She’s yelled at and threatened people illegally smoking in my general vicinity.  She’s explained over and over and over to people why I suddenly can’t go somewhere or participate in some planned activity.  She knows when I’m pretending to be ok.

Earlier this month I was in the ER again.  As usual I was sick of being sick, and worried about being away from work.  I stayed home for two days and against the advice of The Liz, I went back to work because I felt like I needed to be there to assist with a big upgrade.  Well, I showed up, pretended to be ok, worked a full day without lunch, and then spent the next 7 business days at home.  After going back to work I picked up a virus of sorts, became feverish, started coughing crap up, and watched my peakflows drop.  Thankfully Liz convinced me to stay home that entire week and by the end I could actually take deep breaths and in 7 days my peakflow numbers doubled.

I actually feel not so bad this time, and think this is the best I’ve been breathing since May or earlier.  Liz says this is the first time in 10 years I can say I’m doing better than I was last year.  Even though FMLA paperwork is the bane of my existence, listening to Liz and staying home for a couple extra days is way better than not and having to spend an extra week or two home.