Tag Archive for severe asthma

Back in the Hospital

Well, it happened. After two years staying away, I ended up in the hospital for a tune-up. Four days and four nights kind of makes it sound like a vacation or resort reservation, but it wasn’t that fun. This time it was fairly simple, just good old asthma without other complications.

They did all kinds of blood tests to see if any clues came up as to the cause of my exacerbation. IgE levels were about 3x as high as usual so it was determined allergies were the culprit, of which I’ve been complaining for the past couple months. It was a lot of sitting around, neb treatments, IV steroids, and an occasional walk around the hospital floor. I was put into a double-occupancy room but spent almost the entire time by myself.

As usual, my first RT was Scott the sci-fi fan. For some reason every time I’m admitted he is on duty, remembers me, and we talk about the latest in science fiction shows and movies. I recognized a few other respiratory therapists, but none of the nurses. My local lung doctor came by every morning around 7:30 to check in with me and update notes. The hospitalist team quickly decided I had a “complicated and very advanced case of lung disease” and was going to let my lung doctor call the shots. I was glad because doctors unfamiliar with me tend to cut me loose early and I quickly relapse.

While there I got the usual questions and comments:

  • How many years did it take to grow your beard?
  • Are you always this chill?
  • Whoa, your water bottle is HUGE.
  • I LOVE your backpack!

I think my biggest fans were the nurse/tech pair who stuck me 9x before calling a phlebotomist in to draw blood. The phlebotomist walked in, drew the blood immediately, and then trash-talked the other nurses. It was pretty hilarious.

After a few days the hospitalist came by to update me and dispense some advice:

  • We have determined your severe asthma exacerbation was caused by your allergic asthma
  • Be sure to take your medicine when you go home
  • Maybe stay inside with the windows shut cause there are allergies outside

I could have stayed longer, but asked to go. The first day out is always tough, but I’m hoping to bounce back soon.

Prednisone Burst

My lung doc finally gave in and subscribed me some prednisone today. I’ve been feeling bad for about a week. The weather is changing, allergies are bad, one of my kids is kind of sick, and they’ve started harvesting corn. It could be just one, several, or all of those reasons why I’m having trouble breathing. Monday my blood-oxygen saturation kept dipping below 90%, and every day this week my PeakFlow numbers have been steadily dropping. While I really dislike systemic steroids and their side-effects, Liz reminded me it could be worse.

The last time I was admitted to the hospital I had been on 80mg of predisone daily. They gave me two, 120mg IV injections of solumedrol, and then admitted me into a room where they showed up every 6 hours for another 120mg of solumedrol. Some of the side-effects include:

  • It made me a little crazy
  • I became temporarily diabetic and required insulin
  • I retained water and gained weight
  • I developed cataracts
  • I lost muscle tone
  • I couldn’t sleep
  • My hands cramped up
  • My cognitive abilities were diminished
  • I got cranky and moody
  • My vision became blurry at times (probably due to the increased blood sugar levels)
  • My face became round and puffy
  • I lost my appetite

I had been on prednisone for most of the previous 2 years leading up to this hospitalization. When you’ve been on prednisone that long, you can’t just quit. You must be tapered off because your body is somewhat dependent on it. I’m not sure exactly when I developed hypothyroidism, but it was sometime after this long period of time on the medicine. If you want to see a long list of known effects, check them out here.

One of my lung doctors has told me multiple times the prednisone would kill me before the asthma if I couldn’t find a better way to treat my asthma. I’m happy to say this is only the second time in the past 6 months I’ve had to resort to this treatment. I’m hoping the short burst will get me back on my feet.

May is Asthma Awareness Month

May is asthma awareness month. My sister likes to celebrate her birthday for an entire month, so I’ve been trying to share all month about asthma on facebook, twitter, and instagram.

My month has been ok. My little dude ended up in the ER with bronchiolitis again. As time goes on, his breathing resembles mine more and more. Fortunately it’s very episodic for him and only flares up every few months. A few duonebs, some pulmicort, and prednisone fixed him up. It’s interesting to watch him expend as much energy as possible all the time. Even when he’s having trouble breathing, he’ll move and move and move until he ends up lying on the floor.

Speaking of “lying on the floor,” I had a “moment” myself a few days ago. I wasn’t feeling too great and was lying down while the kids watched a movie. The little dude was pretty active, like a spider monkey, as usual. He was kind of climbing on me, and before I knew it, he was jumping on my chest. That triggered some major coughing and wheezing which ended in me crawling towards my medicine, getting too worn out, and lying on the floor for a long time. I was eventually able to get to my meds and noticed my oxygen was 85%. In the moment, these sorts of incidents don’t seem like a huge deal. Afterward, they do seem a bit more serious. I know I’d be exponentially more concerned if I witnessed this happening to someone else.

A couple nebs, magnesium, allergy meds, five hours on CPAP, and some more albuterol had me mostly ok in 24hrs. I should have used an epipen or gotten help. That’s easy to now, but in the moment all i can think about is, “I don’t want to go to the hospital.”

At the moment I’m outside of Pittsburgh and will be visiting my other lung doctor at UPMC tomorrow. It’ll be interesting to see where my PFTs are at and things have changed or stayed the same. A year ago I found out I have idiopathic restrictive lung disease on top of everything else. It’d be really cool if things were better.

Am I the only one that has to pack three times as much medical stuff than clothes on trips? I feel a bit ridiculous sometimes, but I assure you it’s all necessary.